We look up at the sky every day, with hope that we'll see you flying by, in your very own Herbie cloud.





Friday, March 26, 2010

No more Ketogenic diet!

Well, we tried the diet for two months, and no improvements with seizures. His behavior has been quite a bit better, but his seizures are worse. Before the diet, he was having one to two big seizures a day. Now, he can go a few days without a seizure and then has an explosion of seizures. Most of the time it's about 7-9 big seizures in a day, but a few days ago, he had 19 in one day. Time for a change. Conner's neurologist said that the ketogenic diet doesn't seem to be helping, so we are in the process of weaning him off of it. I've been researching the GARD diet, and I think that's our next step!