We look up at the sky every day, with hope that we'll see you flying by, in your very own Herbie cloud.

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Friday, March 26, 2010

No more Ketogenic diet!

Well, we tried the diet for two months, and no improvements with seizures. His behavior has been quite a bit better, but his seizures are worse. Before the diet, he was having one to two big seizures a day. Now, he can go a few days without a seizure and then has an explosion of seizures. Most of the time it's about 7-9 big seizures in a day, but a few days ago, he had 19 in one day. Time for a change. Conner's neurologist said that the ketogenic diet doesn't seem to be helping, so we are in the process of weaning him off of it. I've been researching the GARD diet, and I think that's our next step!